I. Introduction
1. Background
Effective communication between patients and medical professionals is essential for achieving positive treatment outcomes [
1]. Shared decision-making (SDM) is a collaborative approach that integrates expert medical knowledge with patient preferences to make informed decisions [
2,
3]. In 2010, OpenNotes—an online patient portal providing shared access to physicians’ notes—was launched in the United States, enabling patients to easily review electronic medical records created by medical staff for clinical communication [
4,
5]. Studies have explored the perceptions and attitudes of both the general public and hospital workers toward medical records [
6,
7]. Recently, as part of research focused on the “Smart Patients” concept, definitions and methods for applying SDM and OpenNotes in Korea have been actively discussed.
For successful rehabilitation, quality interactions, efficient provision and collection of information, recognition of patient interests and goals, and reinforcement of health-related behaviors are vital [
8]. Mobile applications are increasingly used to monitor chronic diseases and support diagnosis and treatment, including rehabilitation [
9]. However, existing platforms in Korea (e.g., MyHealthWay) do not provide patients access to doctor-authored notes, which limits patient-physician interaction. Patients frequently use web-based platforms and mobile apps to share personal health information, yet finding a platform or application enabling patients to review their own health records written by physicians remains challenging.
Therefore, the objective of this study was to develop a mobile application facilitating effective communication between rehabilitation patients and physicians based on the SDM model, thereby delivering patient-centered rehabilitation services and ultimately improving rehabilitation treatment outcomes.
2. Shared Decision-Making
The phrase “shared decision-making” was first introduced by Veatch [
10] in 1972 and has evolved into a collaborative decision-making approach among patients, physicians, and family members. SDM occurs when decisions need to be made jointly by doctors and patients. It represents a beneficial collaborative method in which the best available evidence is shared, and patients are supported in considering various options to formulate informed preferences [
11]. SDM encompasses open communication, information exchange, and the consideration of patient preferences and values, ultimately leading to a joint decision that respects patient autonomy while leveraging healthcare professionals’ expertise.
Several studies have described the essential elements of SDM [
3,
12–
15], but Stiggelbout et al. [
16] specifically outlined four key steps: informing the patient, explaining options, discussing patient preferences, and making a decision.
Benefits associated with SDM include increased patient satisfaction, decisions that align better with patient values, reduced stress, and more appropriate treatment choices. SDM is particularly valuable in contexts where multiple treatment options exist, as it fosters trust and open communication. This ethical and patient-centered approach enhances the overall quality of medical decision-making.
II. Methods
This study was conducted to develop an application called “REHAB NOTE,” aiming to facilitate smooth communication between rehabilitation patients and physicians. To develop this application, we adopted a software development process for mobile apps [
17], which offers clear advantages in understanding mobile application requirements and designing the architecture and functional flow. The software development process for mobile applications consists of the following sequential stages: requirement analysis, architecture design, navigation design, page design, implementation, and testing. In this study, the final phases (i.e., implementation and testing) were excluded.
The REHAB NOTE application is intended for use by patients receiving medical and rehabilitation treatments, specifically developed with a primary focus on cancer and central nervous system (CNS) injury rehabilitation. Experts in relevant fields (one professor specializing in medical informatics, two rehabilitation medicine specialists, one nursing doctor, and two medical informatics researchers) participated in the development process. The application was developed over the period from May 2022 to February 2023.
1. Requirements Analysis
In-depth interviews were conducted with two physicians specializing in rehabilitation, treatment, and patient management. These were one-on-one interviews utilizing a semi-structured questionnaire, held at the participants’ preferred times and locations. Each interview lasted between 40 and 60 minutes. Key questions explored included the general rehabilitation treatment process, criteria for participant selection, specific services provided according to rehabilitation classification, information necessary for rehabilitation treatment and management, preferred methods of communication with patients and guardians, and functions required for the app implementation. All interviews were recorded, transcribed verbatim, and systematically organized.
2. Architecture Design
In this study, the E4 model—a healthcare communication model—was utilized, incorporating the concepts represented by the four E’s: Engage, Empathize, Educate, and Enlist. Accordingly, REHAB NOTE was designed to create an interactive environment for communication between patients and doctors, emphasize empathy for patients, deliver education and information grounded in empathetic understanding, and encourage active patient feedback.
3. Navigation Design
This phase involved defining the relationships between various components of the user interface within the application. As REHAB NOTE comprises multiple pages, a navigation design diagram was created, clearly illustrating the linkages between pages and specifying data migration paths across pages.
4. Page Design
During this phase, the screen layouts and functions of each application page were carefully designed. For the REHAB NOTE application, detailed content descriptions and comprehensive page design diagrams were produced to clearly visualize each screen’s features and layout.
III. Results
In this study, the REHAB NOTE application was developed to promote active communication between rehabilitation patients with cancer or CNS injuries and their physicians. The results for each stage of the software development process for mobile applications are detailed below.
1. Requirement Specification
The in-depth interviews revealed several important findings. Due to disease specificity and situational uniqueness, patients often lack information regarding rehabilitation treatment approaches and post-discharge management, indicating a strong need to develop services that support effective communication. Particularly, patients undergoing rehabilitation for CNS injuries frequently experience cognitive challenges, while cancer rehabilitation patients typically receive extensive amounts of complex information simultaneously, requiring complementary support strategies. Additionally, patients noted that the information provided when visiting different areas within the hospital could be confusing. Consequently, they sometimes recall incorrect information or management methods, adversely affecting the treatment process.
To address these issues, participants emphasized the necessity of services that improve communication, such as providing access to medical notes after discharge and enabling patients to document their health issues and inquiries. Furthermore, they highlighted the importance of efficiency and convenience in writing medical notes for patient use. The specific requirements for the REHAB NOTE application, derived from the interview content, are summarized in
Table 1.
2. Architecture Design Diagram
The architecture design diagram employing the E4 model is presented in
Figure 1. The diagram clearly illustrates the flow of health-related information, including data input during physician and patient registration and login, medical notes entered by physicians, information accessible to patients, and symptoms or vital signs entered by patients.
During architectural design, the application’s primary objective was to establish an environment that facilitates communication between physicians and patients and implements a patient-centered user experience (UI/UX) for collecting patient-related data. Additionally, the design ensured patients receive the necessary information and are actively encouraged to provide feedback.
3. Navigation Design Diagram
The linking relationships and data migration pathways between pages in the REHAB NOTE application are illustrated in
Figure 2. Patients and doctors initially apply for membership, after which they can log in upon administrator approval. The doctor’s interface enables selection of patients from a patient list, addition or deletion of patient records, inputting medical notes, and reviewing and modifying patient data. Patients can review information entered by doctors. On the patient interface, patients can access the medical notes entered by physicians, as well as input and manage their health status information.
4. Page Detail Design Diagram
The screen layouts and specific functions for each page within the REHAB NOTE application are presented in
Figure 3. A total of 27 user interface and administrator screens were designed in this study. In November 2022, an installation file (version 0.0.3) was delivered to the application developer and subsequently installed on the researchers’ smartphones for trial operations. The final development version (0.0.4) was completed in December 2022 after adjustments, including repositioning buttons for enhanced usability, revising the rehabilitation treatment list, and supplementing dropdown menu contents when recording medical notes.
IV. Discussion
Application-based services tailored for rehabilitation patients have recently been actively developed and utilized for patient education and intervention [
18]. Such applications allow users to access information and content through simple interactions, free from location and time constraints, and facilitate the storage and transmission of essential information; consequently, their usage is steadily increasing [
19]. Furthermore, mobile applications can generate various positive outcomes, such as enhancing patient understanding, education, and communication effectiveness. Therefore, communication service approaches have been recognized as suitable methods for health management among rehabilitation patients [
20–
22].
From a systemic perspective, the REHAB NOTE application streamlines communication from the initial stages of treatment to follow-up visits, reducing the need for separate patient condition records or outpatient calls. It minimizes errors associated with sharing treatment information and enables patients to report their daily health issues, providing medical staff with detailed, up-to-date health status information.
For medical staff, the application reduces workload by minimizing the necessity for telephone consultations and improving the accuracy of patient records. This efficiency can enhance overall work productivity, ultimately alleviating healthcare professionals’ fatigue. However, due to existing legal and institutional constraints, healthcare providers currently face the inconvenience of separately recording information within the application apart from official hospital medical records, thereby creating additional documentation tasks.
To address these challenges and further enhance the application, future development should focus on achieving interoperability, ensuring effective data synchronization, and complying with healthcare regulations such as the General Data Protection Regulation (GDPR) and the Health Insurance Portability and Accountability Act (HIPAA). These developments should be accompanied by policy and institutional improvements specifically targeted at reducing the workload of healthcare professionals.
The REHAB NOTE application was designed based on SDM principles to improve patient-physician interactions and support effective clinical decision-making. Patients can access health records and treatment plans documented by physicians, enabling a clearer comprehension of their health status and treatment options. Moreover, patients can use the application to record personal conditions and rehabilitation goals, facilitating meaningful dialogue with physicians during consultations and promoting active patient participation in decision-making processes. This approach strengthens communication, enhances patient understanding of available treatments, supports personalized planning, increases patient satisfaction with medical decisions, and ultimately improves treatment outcomes.
This study has several limitations. The requirements analysis primarily involved physician interviews due to physicians’ significant influence on treatment plans; thus, patient perspectives were insufficiently represented due to constraints in time and resources. Additionally, the study concentrated on initial design and prototype development stages without including practical application or empirical evaluation. Despite these limitations, this initial research phase holds significance in effectively integrating core features and user requirements grounded in the SDM framework.
In Korea, there remains some reluctance regarding the disclosure of medical records, accompanied by concerns that record accuracy might be compromised, making it difficult to communicate precise information. There are also arguments highlighting the additional burden mandatory record disclosure places on medical personnel. To overcome these issues, broader societal consensus, including input from the medical community, and supportive legal and institutional frameworks are essential.
Despite these limitations, services enhancing communication—not only with rehabilitation patients but also with their caregivers—can further improve treatment efficacy. Moreover, extending existing research beyond cancer and CNS injuries into additional rehabilitation domains could prove beneficial. Additionally, future research might explore methods for delivering customized patient services using accumulated data.
In conclusion, the REHAB NOTE application developed in this study is anticipated to benefit rehabilitation patients during outpatient and rehabilitation treatments at hospitals. Although specifically designed with a primary focus on cancer rehabilitation and CNS injury rehabilitation patients—making it convenient for users to input and review treatment outcomes—the application can also be utilized by patients receiving other types of rehabilitation, including occupational therapy, physical therapy, and speech therapy.
Through future improvements, the REHAB NOTE has the potential to serve diverse groups of rehabilitation patients. Further verification studies are required to assess the effectiveness of the application comprehensively.